Sunday, May 24, 2009

Visit my facebook page!

It is definitely a work in progress. It's also been an exercise in frustration!!! :-( I am very technically and internet challenged. I would much rather be outside on this beautiful morning planting the rest of my flowers then sitting here fighting my way through this set up. But it's already worth it given all that I have learned! I just want to reach as many people as possible with information about HHT and my fund raising efforts. Visit my page on Facebook if you get a chance. I welcome ALL suggestions!!! :-)
Part of my challenge with working on computers has to do with my visual impairment. I have what is called Right Homonymous Hemianopsia. (It took me almost a year after my surgery to be able to say this correctly!! ;-)) The part of my brain where the CAVM ruptured and the subsequent surgery to repair it damaged my right optic nerve. I have very little right peripheral vision. In place of images in my right visual field, I see waves and flashes of multicolored light. I see "Northern Lights", which are very beautiful to be sure, but they block all of the things I'm trying to see on my right side. When I read, I am constantly reading into my blind spot. Driving was, and still is, a major issue!! It is a very long story, but the short of it is I had to learn to read and drive all over again using new visual strategies. I had to pass another road test to demonstrate that I could drive safely. I do have a HUGE rear view mirror in my car that helps tremendously. Over the years I nave really gotten used to compensating for this unique way of seeing, but working on the computer is still a challenge and can become very fatiguing. Again, it's so much better then it used to be. I just quit when I get tired, and head outside for some exposure to natural light engage in anything physical to get the blood pumping!
So, I'm headed out now to do just that. Look out flowers, here I come!
Enjoy this day!!! :-)

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